This
interview
with physician Sherwin Nuland was very thoughtful and IMO is a prudent
approach to the uncomfortable subject of managing end-of-life care
decisions. I know medicine and death are very personal and emotional
subjects, but I think if we dispassionately put the patient's best
interests first and keep expectations reasonable, everyone will end up
happier (especially the deceased) and society can save a lot of health
care resources.
One issue that the doc didn't cover in the interview was assisted
suicide, which has few rational arguments against it, and is becoming
more accepted nationwide - similar to legal pot and gay marriage.
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Also heard something about end-of-life care on NPR the other day. There
was a particular city that had a big promotion of advanced medical
directives. What they found was that, as a result, medical costs went
down quite a bit in their city. Apparently when people make a positive
choice about the type of life they consider worth living it is
significantly less expensive than the care legally mandated in the
absence of a positive choice.
The major roadblock to those advanced directives is human
effort and human emotion. Understandable and probably not an
incredibly high hurdle to overcome.
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Agreed. More and more people are preferring to die relatively
peacefully at home or hospice rather than "keep fighting" to the end
with all the tubes and drugs in them at County General. And the irony is
that the former group tends to last longer, and with less grief on
themselves and the family, than the latter (obviously at much lower cost
too as you said).
There are plenty of war stories where the stubborn commander
refused to face reality and sentenced himself and his men to preventable
death. Even worse, a stupid, egomaniac dictator doesn't understand
opportunity cost, ignores his generals' pleas, and keeps throwing finite
resources at an unwinnable battle, which ironically contributes to
losing the overall war - see Stalingrad or Guadalcanal. We tend to mock
those men and use their folly as teachable moments. So why can't we
apply the same logic to medicine? Unfortunately there is such a thing as
a no-win scenario, so the sooner we come to terms with that, the better
it is for everyone. Would you gamble your life savings on 1 play at
1/1000 odds at the casino? Of course not - so why do we do it at the
hospital? Is it because of moral hazard, or the finality/unknown nature
of death?
On a personal note, what I really hate to see are relatives
pressuring the dying person to "keep fighting" and "not let the disease
win". It gives the false impression that the outcome is mostly in the
patient's control, and it's a matter of effort/will. The patient has
enough to worry about without that guilt. No one wants to be reminded
that they are the source of the everyone's sadness, like it's their
fault. Families may bring up outliers like Lance Armstrong, but forget
that 99.99% of folks like Lance didn't make it. I'm not saying to
abandon all hope, but at least don't impose ludicrous expectations.
Unfortunately, the next of kin can get pretty selfish and they may not
be ready to let go. But during these tough times, the best thing they
can do is show as much comfort and compassion as possible for the dying.
But if it's the patient insisting on exhausting every medical
possibility no matter the odds or costs, I am not sure how a physician
or relative can/should dissuade them respectfully.